The Disabled God by Nancy L. Eiesland

“We concede the precarious position of living a difficult life and affirming our bodies as whole, good and beautiful.” – Nancy Eiesland in The Disabled God

The Disabled God by Nancy Eiesland is a difficult read.

But, it’s worth it.

In it, Eiesland “draws on the themes and advances of the disability rights movement to identify people with disabilities as members of a socially disadvantaged minority group rather than as individuals who need to adjust.  In doing so, she highlights the hidden history of people with disabilities in the church and society and points the way to a fuller version of humanity and justice.”

I’ll tell you right now, my thoughts on this will be nowhere near as analytical or intellectual as Eiesland’s.  You’re welcome.

Eiesland’s work really got me thinking, though.  She spends the first portion of the book detailing the Disability Rights movement.  And I’m so glad she did.  Honestly, “disability rights” is a somewhat alien idea to me.  Unnecessary almost.  Which is kind of the point, right?  Now it seems like a non-issue (though I realize it still is) precisely because courageous people fought/fight for them.  I’ve never encountered discrimination in my own life (that I know about) and I have these people to thank.  It was eye-opening to hear of the discrimination that was and the advances that have been made.

That leads me to something I’ve had a hard time wrapping my head around.  It’s the idea of realizing the necessity of being identified as part of a minority group while demanding to be treated as part of the majority.  It’s hard for me because I feel like saying, “You can’t have it both ways.”  On the one hand saying, “You must recognize that I am different,” and then on the other (so to speak) saying, “But you mustn’t treat me that way.”  I can understand why those without obvious physical disabilities might be confused on how to treat me.  And while it’s a bit confusing to me, I see the importance of it.  Especially, say, 30 years ago.  Drastic changes needed to be made.  By identifying disabled people as a minority group and fighting for their rights a generation ago, the need for such a pronounced designation has been significantly reduced.

The main reason I got this book was because I wanted to hear Eiesland’s reframing of God as “disabled.”  She did not disappoint.  Her brief history of the hypocrisy of the church was interesting, also.  If you look at all the Biblical references to those with “disabilities,” you mostly see one of two explanations: Either he is cursed for something he or his parents did, or he is “that way” to show the miraculous power of God.  There’s very little middle ground.  Either I’m being punished or I’m a miracle.  Eiesland suggests that most disabled people don’t fall into either of these categories.  They are simply people God created and loves and has enabled to bring Himself glory through their “normal” lives.  I especially liked this quote: “For people with disabilities who have grasped divine healing as the only liberatory image the traditional church has offered, relinquishing belief in an all-powerful God who could heal, if He would, is painful!  Yet, who is this god whose attention we cannot get, whose inability to respond to our pain causes still more pain?  This god is surely not Emmanuel – God for us.”

Now, does God heal?  I believe so, yes.  Always?  Obviously not.  It’s logical then to believe that perfect health should not be equated with God’s favor.  A person can be sick or hurt or different and still be exactly how God wants them to be.  In fact, I’ve always been told that I’ll have a “perfect body” when I get to Heaven.  Really?  What does that even mean?  Is that according to what I perceive to be perfect?  Will I look like George Clooney?  Yes, he’s my benchmark.  The truth of the matter is, even Jesus’s “disabled” body remained after His resurrection.  The holes were still there.  I believe there is perfection in our imperfection.  This applies to the Body of Christ, the Church, as well.  We are broken, but He loves us and embraces us as whole.

These are only a few of the ideas The Disabled God sparked within me.  Like I said, it’s a very heady book, but an important one if you’re up to the challenge.  Eiesland does a solid job of taking her research and analysis and making it accessible to the reader.

Get your copy of The Disabled God: Toward a Liberatory Theology of Disability.

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The Start of Something Big

Today was amazing.

And yes, this post is going to be mostly self-serving, but gosh dang, I’m excited.  Also, I’m dramatic.

Today I spoke to my first class (of 3rd graders) about treating others with physical differences respectfully.  We talked about how it’s natural to notice differences, but not ok to stare.  We talked about being curious and how to ask questions politely and respectfully.  We talked about how important it is to not make fun of others.  And I left them with this thought: YOU are valuable.  Every single person is valuable.  I asked if they knew what “valuable” meant and a sweet little girl raised her hand and said, “It means you’re worth something.”  Perfect.  I think there were a number of kids in that room who might have heard they were valuable for the first time.  Or at least the first time in a long time.  I was honored to tell them.

I’ll admit that the five minutes I stood in front while the kids were coming in was somewhat uncomfortable.  One kid came right up and said, “You have one arm.”  “I know, right?” I said.  Awesome.  I told him we were going to talk about it and he seemed good with that.  There was a lot of staring going on.  And you know why it was uncomfortable?  I wanted to engage them all!  But I had to wait to be introduced, ya know?  Once Mrs. Robinson introduced me, though, it was game-on.  “So, you guys are all, what…7th? 8th graders?” I asked. “NOOOOOOOOO!” they yelled.  Putty in my hands.  Er, hand.  I was so comfortable with them and loved engaging them in the conversation.  And they had wonderful questions!  I showed them the jumping-rope video and they all laughed at the funny parts and clapped at the end of it.  I was never more proud of what I do.  “Wow…people really do like these!” I thought.  I mean, I know that already, but it was a totally different experience to see it; to see their reactions.

At the end I fielded questions and juggled for them.  They all ooh’d and aah’d as I juggled and cheered when I was done.  It was awesome.  And a mob of them came up afterward requesting LOH cards so they could go the website later!  One kid even said, “I wish I had an arm like yours.”  Was I really that good?  So good that I made fully-limbed children want to have less arms?  Eh, he was probably an exception.

But, my very favorite part was right as I was leaving.  I had demonstrated how I tie my shoes as they all gathered around me a minute before, so as I packed-up I heard one of the teachers say, “Ok, so I know you’re all very excited to try tying your own shoes one-handed, but we need to move on now and you can try that at home tonight.”  They were ALL trying to tie their shoes one-handed!  The teacher looked at me and playfully said, “Thanks a lot.”  I could only smile.

As I left, I called my wife. “Well…that’s it. Game over. This is what I’m supposed to be doing,” I told her.  And I believe that.  I need to be out telling kids and adults that they are valuable and helping them to see that this is true for everyone.

And this was as good a start as any.

(I’d like to thank my friend Pakou for inviting me to speak and the staff and kids at Leopold Elementary for having me!  It really was a life-changing experience.  See?  Dramatic.)

(I videotaped the presentation, but haven’t checked to see if it turned-out yet. I’ll let you know.)

Tony Memmel at Redamté Coffee House

Tony Memmel played a show in Madison, WI last night and it was awesome.

I could basically end the post there, but I won’t.

It was a blast to connect with Tony again and finally meet his beautiful and talented wife, Lesleigh! They are just such kind and down-to-earth people. Plus, his beard…I’m so jealous. My wife and I brought our kids to meet them, too, and it was priceless to see my son Sam watching Tony’s every move. And later, my wife would say to me, “I wish we lived closer. They’re so great. Plus, I have about a MILLION questions for Lesleigh! She’s the only woman I know who is also married to a one-armed man!” Love it.

Haacks and Memmels showing-off our Lucky Fin bracelets!

Tony’s performance was fantastic. He made Redamté Coffee House his home and made us all feel comfortable. He even played One Week to Philadelphia, just like I “asked” him to! (I demanded it on Facebook, actually) Lesleigh sang with him on a few of the songs and their voices blend beautifully. The tour was sponsored by the Lucky Fin Project and Tony gave a nice plug and thank you from the stage, which was really cool. I hope to have video of the concert up soon!

After his performance, Tony graciously agreed to do a short interview for LOH. Enjoy!

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UPDATE:  See Tony’s FULL PERFORMANCE here!  I’ve also made separate videos for each song.  Enjoy!

How To Clip Your Nails One-Handed

Listen.

I fully understand this is kind of nasty.  The sound of nails being clipped is like nails on a chalkboard to me.  When people do it at work (WHY??) I walk around to find the culprit and then judge them in my mind.  Seriously.

Don't clip your nails at work. It's gross.

That said, I’ve had numerous requests to see how I do it.  And I’m nothing if I don’t do whatever anyone tells me to do.

Enjoy the video!

Flossing is next.

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Nick Newell Is The Man

That was insane.

I just got back from a bar where I watched MMA up-and-comer Nick Newell win his fight to remain undefeated. 7-0, baby. And honestly, I don’t know how he did it. How he got out of the second round and managed to actually win the third is mind-boggling. The win was a true testament to Nick’s training, endurance, stamina, skill and determination. So proud of him.

Right after the win.

Let me tell you about watching the fight, too. It was hilarious. I was at a bar, just watching the fight by myself. Between me and the TV was a group of seven dudes playing darts and Golden Tee. None of them realized I had one arm. Finally, one of them noticed Nick and yelled, “That dude has one f***in’ arm!” They all started watching and making comments (“They prob’ly don’t let that dude wear a hook in the ring”), not knowing I was right behind them. Then one guy came over during the second round and was like, “Do you see this guy?? F***in’ amazing.” He still had no idea I had one arm. After the fight, he came back over and said how impressive Nick was and I told him I kind of know Nick. Then I gave him a LOH business card. He looked at the card, furrowed his brow, then looked back at me…and then it clicked. “Oh sh**, well now it makes sense. Awesome, man.” I couldn’t help but laugh.

What I noticed was that even though they were making comments about Nick’s arm (none of them really derogatory, just…uninformed?), none of them said anything to the effect of, “He’s really good for having one arm.” They were surprised at how good he was given his short arm, for sure, but he transcended his difference and got props simply for being a great fighter; not a great one-armed fighter. I know Nick will like that.

Great fight. Great night.

Congrats, Nick!

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How To Play Piano One-Handed

I’ve always loved playing the piano.

My two favorite pianists.

I took lessons for a little while when I was young and I took music theory in high school, but mostly I’m self-taught.  As with most things I do one-handed, I just figured it out.

It’s always funny when people are listening to me play and then at some point realize I’m doing it with one hand.  They get a quizzical look on their face and say, “Wait…how are you doing that??”

In late 2008 I broke my short arm.  As I began to heal and the swelling started to go down, one of my greatest fears was that I wouldn’t be able to play the piano anymore.  I remember going to my in-laws’ one day and trying to play. My arm was still swollen and I couldn’t hit one key at a time.  I started to cry.  I was mourning the loss of my ability to play piano…albeit prematurely.  Eventually the swelling went down and I gained most of the mobility in my elbow back and my piano playing resumed.  Talk about a joyful feeling!

I’ve always had fun making-up stupid songs, too.  Ask my kids.  Or my wife.  Just don’t ask if they like it.  With that in mind, I present to you the video of how I play piano one-handed!

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I Faced My Fear And It Was Awesome

Last week our family went to Disney World.

It was awesome.

We rented a house with my wife’s family (10 adults, 7 kids) and hit four different parks.  The kids were amazing, the skies were sunny and the Kingdom was magical.  Besides seeing my wife weep with joy as she watched our daughters meet the real life princesses, my favorite moment came when my son overcame his fear of roller coasters.

Granted, I don’t know that Sam has ever even had an opportunity to ride a roller coaster, but when we suggested he go with us on Expedition Everest, that fear became real…real fast.  While the ride was still theoretical, Sam convinced himself he’d love it, so we walked toward the mountain with our Fast Passes.  As we neared, Sam pointed and said, “Dad, look at that mountain!”

 

"Oh, no."

“Yeah, man!  THAT is the roller coaster!” I said.

“Oh…no,” Sam whispered.  “I changed my mind.”

We got to the base and Sam read the sign.  I asked him what he was most afraid of and he started rattling off everything on the sign.  “Heights, far drops, speed, sudden turns…”

So, I started my convincing.

I told him roller coasters are made to scare you, so it’s ok to be scared, but that’s what’s fun!  I told him I wouldn’t let anything bad happen to him and that I’d be right by his side the whole time…screaming like a girl.  I told him I knew he could do it and he needed to believe he could, too.  “Just keep telling yourself, ‘I can do it!’ over and over,” I said.  And with that, we started up the mountain to the coaster.

Right before we got on, Sam looks up at me and says, “Dad, you know what I’ve been saying over and over in my head all the way up here?  ‘I can do it.’  And I know I can!”  I smiled and we piled in.  Moments later we were hurtling through a mountain at breakneck speed, screaming all the way, hands high in the air!  At one point the tracks appeared torn apart by a Yeti, the coaster stopped and began going backwards.  As soon as we righted ourselves, it was time for the drop.  Down the mountain we shot, stomachs in our throats…and loving it!

After the ride, Sam and his two cousins hooted and hollered, “THAT WAS AWESOME!”  They loved it…thankfully.  As we walked away, Sam said, “I faced my fear, and it was awesome!”  I think he got that line from his cousin Noah, and I was so happy to hear him say it.  He really did face his fear and I was so proud of him for doing so.  And it paid off for him!

Sam

Facing our fears is difficult, but so often it leads to good things.  Full disclosure: I’m terrible at facing my fears.  Absolutely terrible.  I think that’s why I was so proud of Sam.  And inspired by him.  I kept thinking about how he can use this experience when he comes up against other fears and how valuable it’ll be.  Then I got to thinking, “Wait, how did I convince him to face his fears?”  In this case, it was because I had faced the exact same fear…20-some years ago.  I was terrified of roller coasters as a kid.  Then, in junior high, our class got to go to Great America and all my friends were going on the American Eagle coaster.  It was only the biggest, scariest, wood-iest of them all.  But, I couldn’t chicken out.  Ahh, peer pressure; the ultimate motivation to face your fears.  Well, I got on the ride and ended-up loving it.  From that day forward, I’d ride anything.  Even if it scared me.  I knew from experience that it’d be great.  That’s why I was able to speak so confidently and persuasively to Sam.

Now I just need to learn how to speak in such a way to myself.

What’s your roller coaster?

People I Want To Meet In The Next Year

Originally posted on RyanHaack.com

A while ago Brad Lomenick posted a list of people he wants to meet in the next year.  I love the idea, so here’s mine (in no particular order):

1. Donald Miller (Going to meet 5/6/12!)

2. Abigail Thomas

3. Anne Lamott

4. Jim Abbott

5. Tony Memmel (Met 10/23/11)

6. Sara Groves (Met 3/9/12)

7. Sage Cohen

8. Brené Brown

Those are the ones I thought of right off the bat.  I feel like there’s a legitimate chance I can meet them all, too.  I’ve actually had personal correspondence with all of them, so that’s a start.

I know there are more that I’ll add to the list, but I figure I’ll keep it manageable for now.

And what’s the common thread here?  All of these people have inspired me in some way.  Whether by their writing, their lyrics, their voices or their skills, they’ve all shaped me somehow.

Take Jim Abbott, for instance.  I was born with one hand and grew-up loving sports.  In 1989, I was 12, and Jim Abbott, a one-handed pitcher, burst onto the scene.  I was a pitcher in Little League and admired him like no other player.  I followed him throughout his entire career, the ups and downs, and even his stint with my team, the Brewers!  Jim’s crowning achievement was throwing a no-hitter with the Yankees and to this day I occasionally go watch the end of that game on YouTube.

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The picture above is of some of my favorite baseball cards of Jim.  The owner of the card shop where I went every weekend to find a new card gave me that signed picture.  That was a good day.  I’d love to meet Jim one day and just thank him for his inspiration.  I’ve got a year, right?

Each of the people listed above deserves a little write-up, but I’ll save them until after we meet.

Who are the people you’d like to meet this year?