As I waited for my lunch order, he walked in.

Immediately uncomfortable, I looked away, hoping he wouldn’t see me.

Earlier this summer he was the umpire for our work picnic kickball tournament.  My team was getting slaughtered when a dude from the other team kicked a ball that was clearly foul.  Everyone knew it, so we all stopped.  Since he didn’t say it was foul, the kicker kept running.  All the way home.  Everyone thought it was a joke.  A few people questioned what was happening.

And then I freaked out.

I didn’t curse him out, but I’m not proud of how I acted.  Pretty sure I said something like, “Way to live up to the stereotype of umpires being blind,” and I know at one point I said, “Congratulations on making this NOT FUN.”  I went on and on because he kept smiling, which just made me angrier.  And it’s not like it mattered; we were getting killed.  It’s just that the call was so obviously wrong and everyone knew it and I hate when things are unfair.

After I calmed down, I apologized to him on the field.  Later on, I saw him and apologized again.  He said, “Honestly, I wasn’t even looking.  I just had to make a call, so I did.”  WHAT??  You could have said you didn’t see it!  It’s a stinkin’ WORK PICNIC.  Breathe, Ryan…breathe.  Anyway, I truly did feel bad, but you know what else I thought?  I don’t want to be known as “that one-handed hot-head.”  People already have an easy enough time remembering me because of my physical difference; I’d rather they didn’t add “jerk” to the mix.

What’s interesting is that this came up when I got my license plate, too.  “Now I have to be a good, even-tempered driver and I can’t go anywhere I shouldn’t be because my license plate will give me away,” I thought.  I have higher standards.  I’m a pastor with one hand who has a license plate that says “1HANDED.”  Oh, the pressure!

There I am, folding under the pressure.

Let’s be honest, though; it shouldn’t take those things to keep me in line.  Sure, it’s true, I might be easier to recognize and remember than most, but that shouldn’t be my motivation to be a good person.  To reign in my temper.  To not go to places I shouldn’t be.  To be a safe and conscientious driver.  We should all be trying our best to live lives that are honest and good and helpful to others, regardless of our occupation or limb situation, right?  Sometimes I get caught-up in the pressure I put on myself because of my differences and, in my opinion, that’s a recipe for disaster.

Those of us with limb differences know we stick out.  And trust me, we feel the eyes on us.  It can be difficult and seem unfair at times.  The truth of the matter, though, is that most of us put this pressure on ourselves.  We have the desire to exceed expectations, even when those around us might not even have the expectations we think they do.  And that’s not your fault, fully-limbed people.  That’s our bad.

Maybe you do the same thing.  You imagine all of these expectations on you and then, feeling the pressure, you crumble and feel like a failure for not living-up to them.  My advice is this: Expectations, schmexpectations.  Forget ’em.  Stop trying to live-up to what you perceive to be other peoples’ expectations and live according to what you know to be true and right.  Will you fail sometimes?  Sure.  Can you get back up and press forward?  Absolutely.

Go get ’em, tiger.

Oh, and if you ever ref a sporting event I’m involved in, do not miss a call.

I have a ways to go.

 

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This one time I ran into a van with a riding lawn mower.

I had told the person I was mowing for that I knew how to use it.  That was a lie.  But, how difficult could it be, right?  Well, apparently it’s important to know how the gears work.  Especially on a hill.  As I started to roll backwards, frantically trying to figure out how to stop, I saw the van out of the corner of my eye.  Before I knew it… WHAM!  I looked around.  As far as I could tell, nobody saw it happen.  I put the mower in gear and off I went.

Sorry…person that owned that van.

I’ve mowed lawns with a regular lawn mower my whole life.  Never made any adjustments.  Starting it can be a bear, depending on the setup of the mower, but it really hasn’t been a problem.

This is a lawn mower.

I still like mowing the lawn, but these days it’s a little more painful than it used to be.  Having to push the mower with one hand is hard on my wrist.  And the vibrations don’t help.  That said, it’s still doable.  (Full disclosure: I live in a condo.  I never mow my own yard.  Don’t worry about it.)

Here’s a video of me starting the mower and mowing a little bit.  Please feel free to post your thoughts and questions in the comments section!

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A friend of mine took her daughter to the park recently.

While they were there, a man asked if he could pray for my friend’s daughter.  She said yes and he proceeded to pray for Kaelyn to be healed.  For her to experience “normalcy.”

And for her fingers to grow.

Kaelyn, besides being as cute as a button, has a little left hand with tiny fingers.

Me and the adorable Kaelyn

Kaelyn’s mom shared this experience on Facebook and the reactions caught me off-guard.  This guy was called a creep and an idiot, even a lowlife scumbag.  It was clear many thought his actions were beyond inappropriate; they were offensive and insulting.

The responses surprised me because I know where this guy is coming from.  I’ve grown-up in an environment where the ability of God to heal people physically is not only believed, but expected.  In fact, when I was younger, I was taken to a “healing convention,” since I was born with one hand.  We all lined-up on the floor of the coliseum and were prayed for.  I was even “slain in the Spirit.”  And by “slain in the Spirit,”  I mean that they pushed on my forehead and I dutifully fell back and then took a short nap.  My arm, shockingly, remained in the same condition.

My belief is that this man at the park was just trying to help.  He was misguided and uninformed regarding what he perceived as her needs, but I truly believe he had her best interests in mind.  Like me, Kaelyn doesn’t need physical healing for her hand.  She’s not ill or in pain, nor does she have a disease; she is the way God made her.  God didn’t forget to have her fingers grow.

Then there is the issue of normalcy, which seemed to be the most offensive part of the experience to those who commented.  “What’s normal anyway?” one person said.  Well, the definition of normal is “to conform to the most common.”  The fact of the matter is, having two hands is more normal than having one or none.  I’m sure that’s where he was coming from when he was praying for her.  Perhaps a better question than “What is normal?” then is, “Who cares about normal?”  Yeah, it’s true, I’m not normal.  I have one hand.  I’m different.  And for me at least, being different is awesome.  I believe that the more I try to be normal, the more I miss out on being unique.

The truth of the matter here is that we all have a lot to learn.

For the Christians in the house: Oftentimes, what seems right and helpful, might actually be perceived as insulting and even creepy.  This man’s words and actions, while well-intentioned, were perceived to be offensive and insulting because he assumed she wanted to be “normal” like him.  He assumed there was something “wrong” with her.  I’d suggest, before offering to pray for someone about what you perceive to be their needs, ask them what their needs are.  Tell them what you’d like to pray about before doing so and don’t be offended if they say, “No, thank you.”  Be open to hearing their perspective and learn from the situation.

And to all the non-Christians:  Be patient with us.  We Christians try really hard, but sometimes our good intentions undermine common courtesy and understanding.  Please believe that we’re trying to help, but also take it as an opportunity to teach us; especially those of us who have misunderstandings about the physically different.  And please don’t think we’re all creepy, idiotic, low-life scumbags.

The way I see it, my friend’s experience illustrated perfectly the paradigm shift that needs to continue in the world, but especially within the Christian community.  Nancy Eiesland’s work, The Disabled God, opened my own eyes to new perspectives regarding physical differences and disabilities in relation to my theological beliefs.  Certainly Jesus healed many with physical ailments, but obviously not all.  There’s no doubt in my mind that God can physically heal people, but I believe our definition of “heal” needs clarification.  For instance, perhaps you remember the paralyzed man whose friends lowered him through a roof into a crowded house because they believed Jesus could heal him.  Jesus first forgave his sins and then, to make a point to the Pharisees about the difficulty of doing so, healed the man physically.  The man’s physical healing was secondary to his spiritual healing.

I’d venture to guess that the majority of us who were born physically different would say we don’t need physical healing.  As I’ve said already, we are not ill or diseased or in pain.  We are the way God made us.  He didn’t screw-up.  We, too, have been fearfully and wonderfully made.

Let me be clear here:  I don’t envy the position “normal” people are in when it comes to knowing how to interact with those of us who are physically different.  I know most of you try hard and do your best, but the truth is, we’re all still learning.  And that’s great.  We have a long way to go, but we’re getting there.  I’m hopeful that the more we identify these issues and work through them, the better off we’ll be.

And just for the record, if you want to pray for me, I have a list.

My arm growing is not on it.

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I’m no Gabby Douglas.

Even when I was a much more nimble boy, gymnastics didn’t interest me.  Just never much of a tumbler or a hand-springer, if you will.

That said, I would like to present to you this one-handed cartwheel instructional video.

Enjoy.

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I spent last weekend in Ohio.

I know, right?

I was invited to be a “guest of honor” at the 2nd annual Helping Hands Midwest picnic, so all five Haacks hopped in the van and made the nearly nine hour trip to Harrison, OH, for the fun.  And we were not disappointed!

Helping Hands Midwest is “a networking group for families who have someone with a hand difference; to get together to share, inspire and celebrate.”  In 2004 my friend Kim’s son, Gabe, was born missing his left hand and they made several trips to the east coast to meet with doctors and a group there.  She thought it’d be nice to have a group like that in the midwest, so…she started one.  She’s awesome.

We pulled into Harrison Friday evening and immediately participated in my kids’ two favorite activities:  Swimming and eating.  Since we were so much farther south than usual, we had to eat at Waffle House.  “This is the best food EVER!” the kids proclaimed.  Vacations are awesome because everything is the best.

Once we hit the pool, the real fun began.  Leading up to the picnic, I wondered how my kids would react to other kids with limb-differences.  I mean, I’m dad.  They’re used to me.  But, what about a bunch of kids running around with little arms?  Well, Joe and his daughter Julia were in the pool.  Julia is beautiful little girl with a hand difference and she was practicing holding her breath.  And then little Gavin showed-up with his family.  Gavin’s hands are different, but you’d never know it with all the swimming and jumping he did!  So, how did my kids react?  As of this writing, I’m not sure they even noticed.

Later that night I had the privilege of meeting Molly Stapelman (founder of LuckyFinProject.org) and her family in person.  Finally.  I had gone to get something from our car at midnight and on the way back into the hotel I see a woman (it was Molly) pop out of her car and say, “Hiiiii, Ryan.”  Classic meeting.  Team Stapelman was a tired bunch, so we said our see-you-in-the-mornings and went to bed.

Saturday morning brought breakfast and more swimming and more limb-different kids running all over the hotel.  I really wonder what the employees thought!  We headed over to the picnic around noon…and it was amazing.  There were nearly 200 people there!  We got checked-in and then made our way around to meet some people and my kids went to play games with the other kids.  Everyone seemed so happy to be there.  And it seemed so natural to me.  I wondered how I would react as I’ve never been around a group of limb-different people before (since I was little, at least).  It just seemed right.

My favorite part was meeting the kids.  There were actually kids there that were waiting to meet me.  Me.  What the heck?  I was so excited and honored to meet them!  And meeting the parents and hearing their stories meant the world to me.  It was so encouraging to hear, in person, that what I’m doing is making a difference.  To look into their eyes and shake their hands and give them hugs…seriously, it was the best.

Abdiel and Me

I got to give a talk, too, wherein I shared my story and gave some advice for raising limb-different kids.  It’s funny because I’m a dad, but all my kids have all their limbs.  But, I was the limb-different kid who was raised well, so I think that gives me a pretty unique perspective.  It went well from what I can tell, but next year I’m going to request a wireless mic or a stand.  It’s hard to hold a mic and speak when you’re a hand-waver with only one hand!  We also got to hear from my friends Eric (MySpecialHand.com), Tony Memmel, Elizabeth Stinson and Molly (LuckyFinProject.org).  Each of them had a unique perspective and powerful words to say.  I’m so proud to be friends with them all.

Saturday night a group of us took over the hotel lobby (shhhh!!!) and had so much fun I think I pulled a muscle from laughing so hard.  I remember looking around and thinking, “These people are amazing.”  Each one of them was funny and kind and compassionate and loving.  There was a comraderie between us all that went witout saying.  And I believe that connection will stay with us for a lifetime.

I’m so grateful for our time in Ohio with everyone involved with Helping Hands Midwest.  It confirmed for me, again, my role in the limb-different community and stoked the fire to push-on toward even bigger and better things.  It confirmed my belief that limb-different kids are some of the most resilient, creative, funny, determined kids on the planet.  It confirmed the fact that the parents of these kids are both down-to-earth and other-worldly.

And it confirmed that carrying two pizzas, a burrito and a two-liter of Sprite into a hotel – with one hand – is a pain in the butt.

Thank you SO much to Kim and everyone that attended the 2012 Helping Hands Midwest Picnic!

See you next year!

Best picture ever. Sam (MySpecialHand), Me, Molly and Ryan (LuckyFinProject), Tony and Lesleigh Memmel

Me and Sam from MySpecialHand.com

Ryan and Ryan, my little buddy (LuckyFinProject)

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A few weeks ago I wrote, “I don’t think I’m very stubborn.”

Yeah…I take that back.

This week I noticed a slow leak in the toilet in my kids’ bathroom.  Upon first glance, it just looked like one of the gaskets had given out.  The whole system was old, so I decided I’d just replace it all this weekend.  Fun Saturday project, right?  Heck, maybe I’ll even make a time-lapse video of the repair for the blog!

I got the parts and tools and set the camera up and away I went.  Everything went smoothly for approximately three minutes.  Then, as I started trying to loosen one of the nuts from the bolt that held the tank to the bowl, I noticed the whole thing kept spinning.  This is a nightmare for a person with one hand.  Two-handers can use one hand to hold the top of the bolt steady with a screwdriver and then work on the nut with their other hand.  I can’t.  So, I just kept spinning it and spinning it, getting more and more frustrated.

At this point, if I was smart, I would have stopped.  Of course I didn’t.  I mean, the video was running and I knew my wife wanted it done and I hate being defeated.  Seriously, ask my wife how I get with these projects. Wait…I take that back.  Don’t ask her.  It got to the point where I had stripped both bolts that I needed to remove, so…ugh, this is so embarrassing…I just grabbed my vice-grips and started torquing them back and forth, hoping to snap them in half.  One of them actually did, but the other one didn’t.  It really didn’t.  In fact, it so didn’t, it busted a hole through the tank.  You can imagine my joyous response.

Well, I was not giving-up.  I went back to the hardware store (we are now two hours into the project) and got a hacksaw (to remove the bolt) and a large rubber washer which would hopefully cover the hole.  I went ahead and put all the new hardware in and hoped for the best.  I turned the water back on and as the tank filled…it also started to leak.  Everywhere.  So, there I stood, sopping wet with sweat, my back and hand killing me, garbage and water everywhere, frustrated beyond belief.  Three hours for nothing.  And I still had to clean all this crap up.  And buy a new tank and do it all over again!

At least a had a cool shirt on.

Stubborn.

Being stubborn can be a blessing and a curse, I suppose.  In this case it seems like a curse.  I wasted a good portion of my day, when I could have stopped as soon as I realized it wasn’t going to work and tried again when I had some help.  That’s not really my gig, though.  I think of it as being “singular focused” or determined or competitive.  “THIS TOILET WILL NOT DEFEAT ME!” I said (before cursing it).

I need to be smart about it, though.  I’m sure a lot of you can relate.  I’m sure it’s naturally ingrained in me to prove that I can do things because of my limb-difference, but there are times I need to be less stubborn and more wise.  There are times I need to ask for help, even if it feels like defeat.

And as I write that, perhaps that’s where the lesson lies.  Maybe I didn’t waste three hours of my day breaking my toilet and my back.  Maybe it was to teach me that it’s ok to ask for help when I need it.  In fact, it’s more than ok; it’s necessary sometimes.  And when we put aside our stubbornness and get the help we need, things tend to work a lot better.

And even though my toilet is still broken, that lesson’s worth three hours.

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By the way…here’s the video:

There’s a Culver’s restaurant two blocks from my house.

Without trying to sound overly dramatic, that’s where my life changed forever.

And I’m not referring to a fried cheese-curd experience.

In late 2010, I was eating dinner by myself (and loving it because I’m an introvert), when I noticed a little boy who had an arm just like mine.  “Cool,” I smiled to myself.  As I finished my meal and headed toward the door, his mom came running.  Slightly out of breath, she presented her son to me.  I remember it being as awkward as that sentence sounds.  He was wearing a Tigers shirt, so I asked if he played ball.  He did.  He explained that he didn’t have a favorite position, but that he played them all.  After a minute we said our “nice to meet yous” and headed toward our cars.

I remember feeling sad as I walked away.  The mom clearly loved her son, but she seemed worried.  It was like she was saying, “Look, son, he’s like you!”  I wanted to give them a hug and tell them everything was going to be fine.  I just wanted to help them.  And that was the very first time that I thought I could be helpful in that way.  Helping amputees and their families, I mean.  The truth is, I hardly ever used to see amputees.  Like, ever.  I honestly never even knew I was an amputee until I broke my short arm in 2008.  To me, the word implies a cutting off.  Like, you get run over by a truck and they amputate your leg.  I was born this way, so I never viewed myself as one.  Now I know the truth, which is that I’m a congenital amputee.

After that experience, I wrote a piece for RelevantMagazine.com called Finding – And Being – Good Community.  It is the very beginning of LivingOneHanded.com, even before I had the name.  In fact it wasn’t until nearly a year later that I launched the blog.  But, that experience was the crucible for everything I’m doing now.

Which brings me to the other night.

On a Thursday night, in the same Culver’s where it all began, I met with Luke and his mom, Jane.  Luke is going into 6th grade, likes to read and play soccer, and his right arm ends at his elbow.  Oh, and he often rides his bike to the Culver’s that is (did I mention this before?) TWO BLOCKS FROM MY HOUSE.  One day he saw my business card on the board there and took it home.  Turns out, our families live less than five minutes from each other.  Coincidences are so awesome.

Luke and I got sundaes and the three of us talked about life with one arm.  Luke told me about his bike (of which I’m totally jealous) and the fun he had at camp recently.  We talked about how it’s a little uncomfortable when you play games at school where you have to hold hands.  “But, if it’s someone I don’t know very well, I just tell them they can grab my shoulder,” Luke said.  His solution caught Jane off-guard.  She was so proud; it was adorable.

Jane told me about Luke’s great friends and also her concerns for him.  “Trust me, you have nothing to worry about,” I told her.  And I believe that whole-heartedly.  Luke is intelligent, polite, confident and funny.  I didn’t say this at the time, but I think Jane’s biggest worry will be keeping the girls at bay!

After a while, we moseyed out to head home.  We gave hugs, took a picture and promised to keep in touch.  As I got into my car, I’ll be honest…I was on cloud nine.  The visit was even better than I had hoped for.  And prayed for.  On the way there I had prayed that I’d have the right words to say, that we’d have a good time, and that it’d be encouraging.  I’m humbled that I get to be a part of Luke and Jane’s story.  It’s an honor.

Luke and me and the LOH-mobile.

What’s so exciting about this “circle of life” event, is that I know it’s still just the beginning.  I’m so excited to be a part of this journey LOH has me on and I can’t wait to see where it goes next.

And I encourage you to be on the lookout in your own life.  Amazing stories can begin anywhere.

Even at a family burger joint.

I’d love if you shared your story with us, particularly if it had an unexpected beginning!

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I have a wallet, but I rarely use it.

I get George Costanza Syndrome when I use a wallet.

I usually just cram everything in my pocket.  Right now, for instance, I have random receipts, some Chapstick, my business card case, my debit card, five pieces of folded-up paper with lists on them and a few other things in there.

But, whether I have a wallet or my pocket full o’ crap, the checkout line at any retailer is one place I get flustered consistently.

It’s just one of those places where my difference is spot-lighted.  Spot-lit?  Whatever.  I’m standing there, the cashier tells me how much it is, and then I have to pay them.  If I have cash in my wallet, I tuck it between my short arm and chest and fumble around to remove the bills.  If my method of payment is in my pocket full o’ crap, I either have to dig around in there or pull everything out and put it on the counter to sift through.

I’m sure nobody else even cares, but for some reason I put a lot of pressure on myself in that situation.  Especially if there’s a line behind me.  Everybody is waiting for the one-handed guy to finish his transaction and God forbid if I should drop something…how embarrassing!

The truth is, I know there are some easy fixes to this.  I could always keep my debit card in my back pocket.  Problem solved.  The only thing is, I’ll never remember to do that.  Never.  I could also just relax.  Nobody cares how nimble I am at paying for my goods…except me!

Where’s the fun in that, though?

The truth is, we all get flustered from time to time, right?  It’s a part of life.  If anything, it builds character.  It keeps us humble.  It teaches us about vulnerability.  We learn from it.

So, the next time you get flustered, take a deep breath, let it out slowly, and smile.

You’re not alone.

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I Am Not One-Armed

July 19, 2012 — 49 Comments

I am not a “one-armed” anything.

A recent article about a limb-different boy in Texas winning his events at a swim-meet has people talking about the mis-use of the term “one-armed.”  Ben Ramirez clearly has two arms, but is missing part of one; like me.

The Man, The Myth, The Legend – Ben Ramirez

So, what’s the deal?  Why does the media default to “one-armed” when there’s any kind of arm limb-difference?  Jim Abbott even spoke to the phenomenon in his book, Imperfect.  Jim has nearly two full arms, but a malformed left hand, and still he was referred to as a “one-armed pitcher.”

“One-Armed” Olympic Champion Pitcher, Jim Abbott

In fact, I very deliberately chose the domain LivingOneHanded.com because, well…it’s accurate.  I didn’t choose OneArmedAndLovingEht.com or IWishIHadAnotherArmWhichWouldActuallyGiveMeTwoAndAHalfArms.ThatSeemsGreedy.Org because my arm is not really the issue.  Plus, that last one is really long.

And as obvious as it may seem to us that “one-armed” is the wrong term to use, I’m going to be honest with you here and say…I understand it.  I understand it because I’m still getting used to all the terms myself.  Eight months ago I had never heard the term “limb-different.”  Never.  In my whole life.  When I started visiting message boards and different online groups, it was like learning a foreign language.  LBE?  RBK?  I’ve learned that those mean Left Below Elbow and Right Below Knee (amputees).  (I bet somebody has a super sweet grid of all these terms somewhere.  I want it.)  Just today, in fact, I got an email from someone who used AK in his note and I had to think hard about what it meant.  Ahh, Above Knee!  And I’m still a novice at all the other terms like Symbrachydactyly.  I just googled that and had to look at it seven times to make sure I spelled it correctly.

It’s a whole different world, this limb-different community.  It’s fun and exciting for me, but there are times I feel lost.  And ignorant.  I am limb-different and can probably tell you less about the science and terms and lifestyle than a ton of the moms around here!  But, I suppose that makes sense.  I grew-up this way and never thought of myself as different, so why would I take the time to learn about it?  My mom, on the other hand (so to speak), probably knows more about it than I do, too.

So, I’m thinking two things.  The first is that we need to be patient.  We need to understand that differences are always a challenge and people generally do their best to treat them with respect and dignity.  That said, it’s also an opportunity for us to teach!  To teach those who are different than we or our kids are how to approach our differences accurately and with respect.  You wouldn’t describe someone with blonde hair as “black-haired” and think it was good enough.  “I mean, hair is hair, right?” you might think.  And you’d be wrong.  And someone would correct you.

I don’t view this as a fight at all.  It’s an opportunity.  Let’s seize the opportunity and learn together.

Also, please don’t buy the domain OneFistOfFury.com.  I’m saving-up for it.

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I used to hate Twitter.

Now I love it.

Tweet tweet.

For the longest time I resisted it as “that stupid thing that’s just a Facebook status and nothing else.”  It took me forever to buy-in and even after I did, it took even longer to embrace.  It just seemed trite and useless.  And really, the way a lot of people use it, it is.

But then stuff like this happens.

NAME-DROPPER ALERT.

First, I quipped about the profile picture of the male half of The Civil Wars.  Matthew Mayfield and I had differing opinions of who it actually looks like.  John then replied, which makes me famous, I’m pretty sure.

I noticed a little back-and-forth between super-humans Chris Brogan and Chris Guillebeau.  They were giving the business to a certain unlikeable Canadian band.  I decided to chime in, because, well…that’s what I do.

Twitter is perfect for zingers.  And bad jokes.

To my surprise, I received notification that Mr. Brogan had responded.

At first I thought he was ridiculing me for forgetting to type “in” before “their PINKY FINGERS.”  But then…say WHAAAAAAAT??!!  Did Chris Brogan just make a ONE-HANDED joke out of my original laugher?

What have we learned here?

1.  Chris Brogan is the man.

2.  I still make one-handed jokes unintentionally.

3.  Interacting with famous people on the Twitter is super fun.

4.  Twitter is awesome.

These are just funny examples, but Twitter really has enabled me to connect with many of my heroes (resisting…urge…to name drop) and introduced me to even more new friends who share similar passions.

And, for better or for worse, it’s allowed me to share innumerable dumb jokes.

LONG LIVE TWITTER.

Who have you interacted with on Twitter that you never would have been able to otherwise?

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